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Mike Nencetti

Mike Nencetti

a tech from Upstate NY who lives in Charlotte NC. GV 980-428-9438
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Here is a link to my wife Beverly's battle with Glioblastoma Multiforme brain cancer http://www.nencetti.org/2013...
Here is a link to my wife Beverly's battle with Glioblastoma Multiforme brain cancer http://www.nencetti.org/2013/12/04/glioblastoma-multiforme/
Thank you. - bentley
That's quite the battle, Mike. - Wicked Bat Catcher from iPhone
Glad that this is helping you, and that you have a record. It's hard to know what to say, Mike, but I think of you and Beverly often, and I wish you all the love and joy you can find together ((hugs)) - WoH: Professor MOTHRA
Aw. Many hugs to you both. - Meg VMeg from Android
My thoughts and prayers continue to be with you all. - Friar Will
Sending you and Beverly lots of prayers and comfort hugs. - Tamara J. B.
Thinking of you and Beverly and praying for comfort and peace for both. *hugs* - Anne Bouey
Reading this made me pause, and offer up a prayer. All the very best to both of you. - Iain Baker
Hugs, lots of hugs also from here - Brixie
Thanks everyone. I had been forgetting to use Twitter, so I thought I would leave the link as my last tweet for a while. Forgot it would filter here. Been busy managing the hotel/ restaurant/ zoo that is our home. Her condition is changing slowly, vitals are good. I'm good. - Mike Nencetti
We may have reached the point where she stays in bed. The Hospice nurse recommended no more commode. She is experiencing pain. May need to start the morphine drip. Our plan is to keep her here. She still has her smile
What a tough thing. Thinking of you.. - Mary B: #TeamMonique
Sending you both prayers of comfort. - Janet from FFHound!
Sending good thoughts to you both. - Galadriel C.
Keeping you both in my thoughts. - vicster: full-bodied
Mike, I have been praying for you and your wife and will continue to do so. - Jim: with more caffeine!
Much love, Mike. Praying for y'all. :( - LB: Water Witch
I'm glad you have the hospice to support you all ((hugs)) you are in our thoughts - WoH: Professor MOTHRA
Love and prayers to you both. - Mary Carmen
My thoughts are with you. - Micah from FFHound(roid)!
Strength and peace. - J. Marie B
Thinking of you guys... Praying for peace and comfort for both of you. - Lisa L. Seifert from iPhone
I am so sorry :( - Monaca di V.le Monza from iPhone
Much strength. - Wicked Bat Catcher
Be well - WarLord
Wishing you both peace. *hugs* - Anne Bouey
Peace and blessings to both of you. - Corinne L
Thinking of you both. - Me
Lots of prayers and comfort to you both. - Tamara J. B. from FFHound(roid)!
*hugs* - bentley
Thinking of you and Beverly. Peace for both of you. - Greg GuitarBuster
having been through this so recently with my father, my thoughts are very much with you all. - ellbeecee from Android
I'm glad that, despite her pain, she is still smiling. You're both in my thoughts. - Jenny H. from Android
definitely keeping you both in my thoughts - Mr. The Jason Fleming
may you all be peaceful: you, your wife, your family, and the hospice workers. may you all be free of suffering. - Stephan!e•CogSc!L!brar!an
thank you everyone. FF is a special place. y'all rock. - Mike Nencetti
Tonight many siblings visited, (From New York, California and Illinios.) Beverly was well enough to be wheeled into the kitchen, as food was bring prepared. She was only able to stay in the chair around 90 minutes, but what a a great time. The party was relocated to her son's house so she could sleep. Wonderful evening.
Our only issue is I cannot wake her to give her Kepra, her anti seizure pill. out cold. - Mike Nencetti
I'm glad you had a good visit. - LB: Water Witch from Android
That's good to hear, Mike. - Anika
I'm so glad that you and Beverly had a great evening. - vicster: full-bodied
that's wonderful for all of you. - Stephan!e•CogSc!L!brar!an
My wife can barely speak at all, due to the tumor. (to communicate we ask questions and she nods) I have noticed in the early mornings she says a few words. I made a short video and emailed it to her daughter, saying thank you and love you. only 5 words, but the video made her day.
You are a good guy, Mike. These days are precious and it takes a huge heart to share them. You are amazing. - Shannon - GlassMistress
no matter how bad things are - we try to find some joy in each day, we call them small victories. its going to get tough in the coming weeks. we have all the hospice meds ready to make this as comfortable as possible. thanks shannon. - Mike Nencetti
That's really beautiful, Mike. - Jenny H. from Android
Be well - WarLord
that's a wonderful thing to do -it's something her daughter can hold on to and save. Having just watched my dad in hospice care and my mother caring for him, please remember to take care of yourself too. And yes, the small victories, whatever they are, are so important. - ellbeecee
What a beautiful gift, Mike, both for Beverly that she was able to tell her daughter that she loves her, and for her daughter, who will treasure that. I continue to hold you both close in my thoughts. - vicster: full-bodied
That's a wondferful thing to have done, Mike. I wish you both many more victories and joys in the coming weeks. - WoH: Professor MOTHRA
Do what you can to take care of yourself. With my mom we would watch videos of family a little bit but lots of distracting videos like Too Cute kittens and dogs. Different situation for you but I hope you keep finding your Too Cute moments together. - Steve C Team Marina
All the best Mike. - Eric - It's My Thing
contacting hospice creates family drama. Im ok with being the bad guy.
I'll do my best to keep the drama off of Facebook. I just desperately needed a hospice bed. My poor wife is going through hell. She may be put through more hell, I'll just do my best to give her the best care. She deserves it. - Mike Nencetti
She cannot talk, she cannot walk, she cannot dress herself, she cannot tell someone she is in pain. Things will get worse, horrifically worse. My calling hospice was an intervention for her. A cry for mercy. But unfortunately family may step in and - well hopefully the bad guy can get her the care she needs. I do not need to be liked, - Mike Nencetti
What is the opposition to hospice? - Anne Bouey
Do what you need to do. My dad has been at home under hospice care since mid/late August. He's very near the end now, but this was the right thing to do. You know your wife and what she wants. Focus on getting that. - ellbeecee from Android
Chemo is out because she cannot move without crap loads of steroids and and almost choked on her vomit a few days ago, by the time could qualify for a trial she wil most likely be dead. I really have no idea. - Mike Nencetti
I'll just let things play out. My only drama was taking the Drs advice and contacting hospice. But wow, am amazed how that can cause so many attacks on me. I'm ok. I will take the hits for my wife. - Mike Nencetti
Oh, Mike. I really hope that the family comes around and realizes that hospice care is what is best for Beverly. - vicster: full-bodied
It's her daughter. She will be here soon. - Mike Nencetti
I'm sorry that their way of dealing with their grief is to lash out at you, Mike, and you are a very forgiving guy to take it on the chin like that. You know what is best, and you are doing what you need to do. All strength and love to you both ((hugs)) - WoH: Professor MOTHRA
My hope is that when her daughter arrives, she will be able to meet with hospice and see that they are there to keep her mom comfortable and to support you and all the family (including her). These are always tough decisions, but you know best. I wish you peace, Mike. *hugs* - Anne Bouey
glioblastoma destroys famiies. We are fortunate, most GBM patients have little quality of life. I'll let her daughter do what she wants. I am as worried for her as I am for my wife. Being the step dad, not being likes is part of the job. I do not think there is much she can do.. - Mike Nencetti
Hopefully she does what's best for her mum and not just what's best for her. Quality of life goes up and down the chain and playing the hero (or martyr) isn't always the best option for the person who needs the care. Sending peace and love, my friend. - Johnny
I can't say enough wonderful things about hospice. In my experience, people get upset that hospice gets involved because they're afraid it means their loved one is dying today or tomorrow .. and while that can be the case .. you'll get more benefit from hospice if they get involved before it gets to that point. Hospice offers amazing support and counseling for the entire family and they... more... - Kristin
Thanks everyone. i meet with the social worker, and hospice nurse today. not yet heard about the bed. I'm going into work the rest of the week, to avoid as much drama as possible. i'm being treated like one of the kids, not her husband. i'll try to update this thread soon. i'll get counselling soon. i am sure I will need it. - Mike Nencetti
I often wish Josh's family had been okay with hospice care for my MIL rather than try to nurse her themselves at home. I honestly think it would have been better for everyone. - Melly - #TeamMarina
oh dear, Mike. I'm so sorry. But I am glad you've called hospice. I hope you get counseling and the support you need from your own sources. (I bet hospice can help you!!) - Stephan!e•CogSc!L!brar!an
Being "the bad guy" is often merely surrogate for "doing what no one else has the courage to do, even though they realize it must be done." You are to be commended in the manner you've taken care of your wife, Mike. Not that you need a pat on the back from me (or anyone else). - MoTO: Team Marina
Thinking of you, Mike. I hope the family will realize you are trying to do the best thing for Beverly and the rest of you. - LB: Water Witch
Maybe it isn't that they object to hospice care, as much as they object to what it means. And yes, you would naturally be "the bad guy" for making them face the truth and taking away any false hope they have left. But for your wife, it's probably best that she is cared for by people that understand her needs, as you understand them, and not cared for by people trying to cling to their... more... - April Russo
Well said, April. - MoTO: Team Marina from Android
Fear does horrid things to people. I hope her daughter understands you are doing this for love of her mother. So very sorry you are dealing with this! - Janet from FFHound!
Love you man I made the call on mom's hospice but I had a supportive family who trusted me and my decisions. I can't imagine going through it up stream. You're doing all you can the best you can and for the right reasons. Take care of yourself please. - Steve C Team Marina
Thanks everyone. Great meeting with the hospice nurse today. Huge help for Beverly. So glad we have this in place. We would soon be in the ER if not. The nurse will return in two days and meet with Beverlys daughter. I'm going to work wed-fri. We still do not have the bed. I believe the drama will be minimal. Beverly will get the care she needs. - Mike Nencetti
Glad it sounds like things are getting resolved. - Anika
I'm so glad that things are settling toward Beverly getting the care she needs and hope that the drama stays at bay. I'm glad you are seeking out care for yourself as well. Care for caregivers is so hugely important. It is exhausting in every way. - vicster: full-bodied
I'm so glad that the meeting went well and I'm sending good thoughts to you all - Galadriel C. from Android
Drama is done for now. I'm slowly seeing people help.Family becoming family. neighbors volunteering to help. more food than we need. we have a lot of challenges ahead. I think we will be ok. - Mike Nencetti
So good to hear that things are settling down a bit and people are helping out. Don't hesitate to say if there is anything you need, or if you just want a place to vent. ((hugs)) to you both. - WoH: Professor MOTHRA
Update for those who follow us here. We are done with chemo. My wife wanted to try a 5th chemo, but she is unable to handle it. the latest MRI is bad. Family has been visiting this week. They have seen a decline in the 5 day they were here. She probably has 3 months. My focus is on her quality of life. More family will be visiting.
I am actually in a good place, it was tougher when she lost her communication a few months ago. I have shifted into the caregiver mode. - Mike Nencetti
Oh, I'm sorry to hear that Mike. I'm glad that you and Beverly are surrounded by family at this time. - Anika
We have had a good run Anika. Many people with her cancer only last a few months. We have had many good memories in the last 15 months. - Mike Nencetti
Be well - WarLord
*hugs* My thoughts and prayers are with you both. - Anne Bouey
I'm so sorry. Much love to you both. - Jennifer Dittrich from FFHound!
Thinking of you both. - Marina's Godmother :-)
I'm so sorry. I'm hoping for more good months. - Eivind from Android
You're both in my heart. Sending much love your way. *hug* - Jenny H. from Android
Sorry, Mike. - Wicked Bat Catcher from iPhone
MIke, I am so very sorry to hear this update. Know you and Beverly are in my prayers. - Janet
Sorry to read this, Mike. You both are in my prayers and thoughts. - Friar Will
I'm sorry, Mike. - bentley
I am so sorry, Mike. - Corinne L
Oh, Mike. So very sorry. - Mary B: #TeamMonique
You and Beverly are in my prayers also Mike. - Eric Logan from FFHound!
Strength and love to you both, and please let us know if there is anything we can do ((hugs)) - WoH: Professor MOTHRA
You have our love and support. - m9m, Crone of FriendFeed
Continuing the prayers, Mike. I'm so sorry. - LB: Water Witch from Android
Peace to you and yours - Steve C Team Marina
Mike, you and Beverly are always close in my thoughts. I am very sorry that she is unable to handle further treatment. Sending love and strength and peace to both of you. - vicster: full-bodied
(((hugs))) - Marie
I'm sorry, Mike. - Brent Schaus
I'm sorry. - Rodfather from Android
You're in my thoughts. - Kristin
Peace and love to the two of you and all your family and friends. - joey
I am so sorry. - Yolanda
Sending much love xxxx - Melly - #TeamMarina
Praying for both from Rome I am sorry PEACE AND LOVE - NickCodipietro
Mike - I'm so sorry about this but very glad that you and Beverly have had a good 15 months with memories made. Sending good thoughts to you both. - Galadriel C. from Android
I think things have settled down. There should not be a lot of drama. My wife has slept all day. The steroids are not helping give her energy. Hope the bed arrives today. It was exhausting but I got her showered and changed on my own this am. Glad to know I'll have help. Thanks everyone for listening. - Mike Nencetti from iPhone
My thoughts and prayers are with you and Beverly. - Tamara J. B. from FFHound(roid)!
Just another selfie with my lovely wife Beverly at Levine Cancer Institute. http://t.co/FHivddpLlv
Just another selfie with my lovely wife Beverly at Levine Cancer Institute. http://t.co/FHivddpLlv
Taking Beverly shopping at Aldi http://t.co/dWYHRBPYlo
Taking Beverly shopping at Aldi http://t.co/dWYHRBPYlo
Oh, you have an Aldi! Jealous! - Marie
Yes, my wife loves to shop here. She has very little energy to walk, but finds enough for Aldi. - Mike Nencetti from iPhone
How are you both doing, Mike? - WoH: Professor MOTHRA
We are well. no falls this week. Family in for the next few days. MRI Wednesday, Chemo Thursday. Tough decision to up steroids. currently a half pill a day. main stress is the fall risk. a bad fall would change everything. - Mike Nencetti
I'm glad things are going well this week. You are both in my thoughts. - WoH: Professor MOTHRA
Rose from Visiting Angels takes Beverly to see the aquarium at Concord Mills Mall. http://t.co/pofuI7amf0
Rose from Visiting Angels takes Beverly to see the aquarium at Concord Mills Mall. http://t.co/pofuI7amf0
Blackouts can put a damper on your weekend plans. Fortunately she did not get hurt either time.
Oh, how scary. I hope you aren't too frazzled. - Anika from Android
Is she doing any better today? - Stephen Mack from iPhone
Oh geez. :-( I'm glad she wasn't hurt and hope she is doing better. - vicster: full-bodied
Today is sleep. She ate well this morning. It's going to be a challenge keeping her safe because she rarely talks. Rarely seeks help. - Mike Nencetti from iPhone
Oh Mike, keeping you and Beverly in my prayers. - Janet
You're in my thoughts, - Marie
just rest in bed today. Very little energy. Her inability to communicate much does complicate helping her get better. Most likely increase her steroids tomorrow. - Mike Nencetti
Thank you Crescent Communities for the Honeybaked Ham gift package! Y'all rock! http://t.co/Za7GxbFWhn
Thank you Crescent Communities for the Honeybaked Ham gift package! Y'all rock! http://t.co/Za7GxbFWhn
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
I have a home care person staying with her during the day when I am at work. It's not cheap but it will help us. They start Tuesday. Hope it works out. - Mike Nencetti
<3 - Marie
A nice weekend at Lake Murray SC. Beverly is doing well. http://t.co/PBdyY1lrwN
A nice weekend at Lake Murray SC. Beverly is doing well. http://t.co/PBdyY1lrwN
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Her communication issues are tough. She has difficulty in constructing sentences. She's unable to email, or text, or use written communication. When people email her I have the challenge of replying for her, When people call her I have to explain she wants to talk, but will get stuck. She most likely will need full time care soon. New chemo drug tomorrow. I'm used to this. we are still doing well, I'll use FMLA if it comes to that. I can work some at home, people will be staying with her, we have a great support group with family friends and our church. Glioblastoma multiforme is called the monster. I am on many facebook groups. I see how it can destroy the caregivers. there is no cure because it is not one cancer. well, thats all I have. im doing ok. - Mike Nencetti
Holding her and you in prayer. - Jim: with more caffeine!
{{{Mike and Beverly}}} I'm glad you have a support system. - Anika
Thinking of you both and sending good thoughts. - Galadriel C.
*hugs* for you and Beverly. - vicster: full-bodied
Thanks everyone. - Mike Nencetti
Sorry, Mike. I can only imagine how difficult this is. - Wicked Bat Catcher
((hugs)) thank you for keeping us updated, Mike. Love and all good wishes to you both. - WoH: Professor MOTHRA
Much love to y'all. - LB: Water Witch from Android
I can't imagine how tough this must be, and I applaud and am humbled that you both can find a smile. You are lovely people. - Shannon - GlassMistress
My lovely wife Beverly awaiting her avastin and new drug lomustine (ceenu) at Levine Cancer Institute. http://t.co/IT1ijv9T6S
My lovely wife Beverly awaiting her avastin and new drug lomustine (ceenu) at Levine Cancer Institute. http://t.co/IT1ijv9T6S
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Her issues are fatigue, balance and communication (aphasia). But she is still her joyful self. - Mike Nencetti
Joy The key to living is not happiness, it is joy. My lovely wife Beverly is an excellent example of a joy filled life. - http://nencetti.tumblr.com/post...
Joy
 
The key to living is not happiness, it is joy. My lovely wife Beverly is an excellent example of a joy filled life.
Taking Beverly to her first Knights game. http://t.co/kyziNaUOOs
Taking Beverly to her first Knights game. http://t.co/kyziNaUOOs
Today's walk for Beverly was pure willpower on her part. Very proud of her. http://www.mapmywalk.com/workout...
Today's walk for Beverly was pure willpower on her part. Very proud of her.  http://www.mapmywalk.com/workout/672809679
3rd walk this week following chemo for Beverly. http://www.mapmywalk.com/workout...
3rd walk this week following chemo for Beverly.  http://www.mapmywalk.com/workout/664288799
Sunday walk with Beverly. 3rd walk in a row following Thursdays chemo. 2.2 miles on the greenway. http://t.co/vPGqPyOTUG
Sunday walk with Beverly. 3rd walk in a row following Thursdays chemo. 2.2 miles on the greenway. http://t.co/vPGqPyOTUG
Hello Friendfeed.
I miss conversations. brain cancer unfortunately can make every conversation a struggle. - Mike Nencetti
We miss you, too. Hoping and praying for the best for y'all. - LB: Water Witch from Android
Just to clarify for all - left frontal lobe glioblastoma brain tumors affect personality and communication. If you met my wife you would have a normal conversation. When I talk to her she takes everything I say is an attack. I am on numerous Facebook support groups, our situation is common. She's doing good. she has lost some weight, had some falls. but is still independent. She still drives, she can be on her own. Chemotherapy will not cure her. Immunotherapy is her best hope for long term survival. - Mike Nencetti
You and your wife are always near in my thoughts. - vicster: full-bodied
Hey Mike. It's good to hear from you. I'm sorry to hear that conversations with Beverly are becoming increasingly difficult. I hope your support groups are helping you cope with the changes. I can't imagine how difficult this must be for you both. *hug* - Jenny H. from Android
Service with Beverly. (@ Mecklenburg Community Church - @meckchurch) https://www.swarmapp.com/nencett...
Service with Beverly. (@ Mecklenburg Community Church - @meckchurch) https://www.swarmapp.com/nencetti/checkin/53d41912498ed0786e6240fa?s=dBa_ZTHozrz730dD4cmg2CXOSlE&ref=tw
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too. http://www.mapmywalk.com/workout...
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too.  http://www.mapmywalk.com/workout/662978751
She walked yesterday too. So to walk both days following a chemo is awesome. Still waiting to see if there are any side effect to her new chemo drug. none yet. - Mike Nencetti
Volunteering with Crescent Communities at Second Harvest Food Bank @FoodBankonthego
Chemo selfies - at Levine Cancer Institute - with my lovely wife Beverly. http://t.co/menlrlue9k
Chemo selfies - at Levine Cancer Institute - with my lovely wife Beverly. http://t.co/menlrlue9k
Cyndi's confirmation - http://www.youtube.com/watch...
Cyndi's confirmation
Play
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