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Mike Nencetti › Comments

Mike Nencetti
Taking Beverly shopping at Aldi http://t.co/dWYHRBPYlo
Taking Beverly shopping at Aldi http://t.co/dWYHRBPYlo
Oh, you have an Aldi! Jealous! - Marie
Yes, my wife loves to shop here. She has very little energy to walk, but finds enough for Aldi. - Mike Nencetti from iPhone
How are you both doing, Mike? - WoH: Professor MOTHRA
We are well. no falls this week. Family in for the next few days. MRI Wednesday, Chemo Thursday. Tough decision to up steroids. currently a half pill a day. main stress is the fall risk. a bad fall would change everything. - Mike Nencetti
I'm glad things are going well this week. You are both in my thoughts. - WoH: Professor MOTHRA
Mike Nencetti
Blackouts can put a damper on your weekend plans. Fortunately she did not get hurt either time.
Oh, how scary. I hope you aren't too frazzled. - Anika from Android
Is she doing any better today? - Stephen Mack from iPhone
Oh geez. :-( I'm glad she wasn't hurt and hope she is doing better. - vicster: full-bodied
Today is sleep. She ate well this morning. It's going to be a challenge keeping her safe because she rarely talks. Rarely seeks help. - Mike Nencetti from iPhone
Oh Mike, keeping you and Beverly in my prayers. - Janet
You're in my thoughts, - Marie
just rest in bed today. Very little energy. Her inability to communicate much does complicate helping her get better. Most likely increase her steroids tomorrow. - Mike Nencetti
Mike Nencetti
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
I have a home care person staying with her during the day when I am at work. It's not cheap but it will help us. They start Tuesday. Hope it works out. - Mike Nencetti
<3 - Marie
Mike Nencetti
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Her communication issues are tough. She has difficulty in constructing sentences. She's unable to email, or text, or use written communication. When people email her I have the challenge of replying for her, When people call her I have to explain she wants to talk, but will get stuck. She most likely will need full time care soon. New chemo drug tomorrow. I'm used to this. we are still doing well, I'll use FMLA if it comes to that. I can work some at home, people will be staying with her, we have a great support group with family friends and our church. Glioblastoma multiforme is called the monster. I am on many facebook groups. I see how it can destroy the caregivers. there is no cure because it is not one cancer. well, thats all I have. im doing ok. - Mike Nencetti
Holding her and you in prayer. - Jim: with more caffeine!
{{{Mike and Beverly}}} I'm glad you have a support system. - Anika
Thinking of you both and sending good thoughts. - Galadriel C.
*hugs* for you and Beverly. - vicster: full-bodied
Thanks everyone. - Mike Nencetti
Sorry, Mike. I can only imagine how difficult this is. - Stephan #TeamMarina
((hugs)) thank you for keeping us updated, Mike. Love and all good wishes to you both. - WoH: Professor MOTHRA
Much love to y'all. - Signs Point to LB from Android
I can't imagine how tough this must be, and I applaud and am humbled that you both can find a smile. You are lovely people. - Shannon - GlassMistress
Mike Nencetti
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Her issues are fatigue, balance and communication (aphasia). But she is still her joyful self. - Mike Nencetti
Mike Nencetti
Hello Friendfeed.
I miss conversations. brain cancer unfortunately can make every conversation a struggle. - Mike Nencetti
We miss you, too. Hoping and praying for the best for y'all. - Signs Point to LB from Android
Just to clarify for all - left frontal lobe glioblastoma brain tumors affect personality and communication. If you met my wife you would have a normal conversation. When I talk to her she takes everything I say is an attack. I am on numerous Facebook support groups, our situation is common. She's doing good. she has lost some weight, had some falls. but is still independent. She still drives, she can be on her own. Chemotherapy will not cure her. Immunotherapy is her best hope for long term survival. - Mike Nencetti
You and your wife are always near in my thoughts. - vicster: full-bodied
Hey Mike. It's good to hear from you. I'm sorry to hear that conversations with Beverly are becoming increasingly difficult. I hope your support groups are helping you cope with the changes. I can't imagine how difficult this must be for you both. *hug* - Jenny H. from Android
Mike Nencetti
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too. http://www.mapmywalk.com/workout...
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too.  http://www.mapmywalk.com/workout/662978751
She walked yesterday too. So to walk both days following a chemo is awesome. Still waiting to see if there are any side effect to her new chemo drug. none yet. - Mike Nencetti
Mike Nencetti
Crescent communities serving at the Charlotte rescue mission @cltrescue http://t.co/xtMbVhztfg
Crescent communities serving at the Charlotte rescue mission @cltrescue http://t.co/xtMbVhztfg
We served lunch to 75 people. - Mike Nencetti from iPhone
Mike Nencetti
Tonight dinner. Trader Joes Poutine. http://t.co/Hmkinaq3Nn
Tonight dinner. Trader Joes Poutine. http://t.co/Hmkinaq3Nn
How is it? I've always eyeballed it every time I'm at TJs. - rönin
I can't speak for Mike, but I thought it was pretty decent (especially for something you could pull out of the freezer.) - Jennifer Dittrich
I liked it. The cheese curds squeaked. I wish there was more gravy. But not bad for a frozen dinner. - Mike Nencetti from iPhone
(Curtis) Alan Jackson
So I'm looking for a couple projectors to be used to display documents in a medium size conference room with full lighting. (It's instructions for constructing a papercraft project, which they'll be working on.) I'm in some deep water with the various options. Anyone have experience with a sub-$500 that will work in a bright room? - cont -
Audio is being handled by a separate system and we'll be using laptops to provide the video. I have zero brand loyalty. :) - (Curtis) Alan Jackson
Oh, and we'll be getting 'inexpensive' screens as well. - (Curtis) Alan Jackson
Will you be projecting from a computer? Any reason not to buy a cheap HDTV & a Chromecast or HDMI cable instead (keeping in mind that the Chromecast will only work if you have standard WiFi available; it won't work if the WiFi requires you to go through a portal)? - COMPLICATED MR. NOODLE
We thought about that option but we'll have people around a large conference table with the display at one end. A projector will let us have a large image without the storage issues of the cheap HDTVs afterward. We'll be sending the video by laptop. - (Curtis) Alan Jackson
cheaper projectors often do not display high res, and you get resized to 1024x768. Lumens (brightness) is great, but it is also nice when the laptop does not resize. We have a small powerful Optima projector but it was around 900$. - Mike Nencetti
In a way, high resolution would work against us. We're displaying documents detailing steps of putting together a project. Big is good in this case. :) - (Curtis) Alan Jackson
Everybody always wants to get the most for the least $. I'm trying to balance quality with cost agains possible future reuse. - (Curtis) Alan Jackson
(Curtis) Alan Jackson
This was going to be a different post. However, between starting it a few minutes ago and now(ish), I have forgotten what it was going to be. I suppose you can all back to whatever you were doing before you started reading this. (Assuming you remember.)
Mike Nencetti
I'm at West Virginia Welcome Center (Falling Waters, WV) http://4sq.com/1mrtO4o
I'm at West Virginia Welcome Center (Falling Waters, WV) http://4sq.com/1mrtO4o
Professor, that's like telling someone in Napa to say hello to someone in San Diego. - NOT THE CRICKET
the road trip was for my wife. so I did not try to stop to see any friendfeed peeps. One of these days i may travel the country and visit ff people. I am getting good at these long road trips. - Mike Nencetti
Mike Nencetti
The Bev and Mike road trip '14 continues. Traffic is ok. (@ Ladysmith Safety Rest Area North) http://4sq.com/1s3ZIoy
The Bev and Mike road trip '14 continues. Traffic is ok. (@ Ladysmith Safety Rest Area North) http://4sq.com/1s3ZIoy
Are you all coming up to Pennsylvania??? - Friar Will
glad you two are away from arthur - chaz2b
We are in New Jersey. Just a day in wyomissing and then back to nc. - Mike Nencetti
Mike Nencetti
Yes I have to occasionally work here. - Mike Nencetti
Mike Nencetti
I decided to put my recent Palmetto Bluff photos into a Flickr photo album https://www.flickr.com/photos...
I decided to put my recent Palmetto Bluff photos into a Flickr photo album https://www.flickr.com/photos/nencetti/sets/72157645410079334/
Yes I have to occasionally work here. - Mike Nencetti
(Curtis) Alan Jackson
After recently hearing about how Twitter is (supposedly) heading towards the digital graveyard, I think I'm actually more interested in it. After all, we've apparently been zombies on Friendfeed for years. I highly doubt Twitter will completely die, regardless of their foot-shooting efforts.
I am almost using twitter. I may wind up using it to get news feeds. - Mike Nencetti
Mike Nencetti
This was my lunch Friday. Shrimp and grits, brussels sprouts and farro. All topped with sriracha. By Beverly. http://t.co/queDiK4bf4
This was my lunch Friday. Shrimp and grits, brussels sprouts and farro. All topped with sriracha. By Beverly. http://t.co/queDiK4bf4
Those shrimp look massive! - Melly - #TeamMarina
Melly, my wife told me she bought Australian shrimp. - Mike Nencetti
Huge and probably deadly poisonous. - Uli
Kevin Fox
"Who is your all-time Favorite movie character?" Why the heck would I choose that as a security question? I have no freaking idea.
Henchman #4 - Micah from FFHound(roid)!
torgo - Mike Nencetti
Hodor - Stephen Mack from iPhone
'You know what ol' Jack Burton always says at a time like this?' 'Who?' 'Jack Burton. ME.' - Akiva
2nd Tall Man - Kevin Fox
The Thing. - Louis Gray
I am with you on the efficacy of this query. I have no clue either. - Janet
Stuntman. - Joe
Foley Artist. We always applaud them at the credits. - m9m, Crone of FriendFeed
Wilhelm, for his scream. - Amit Patel
Assyrian Ambassador. That guy was one hell of an actor. - Steven Perez
Stephen, Hodor isn't a MOVIE character. :P - Ken Gidley from iPhone
Screaming lady - Heather
Random Subway Rat. - April Russo
Z wins, but does it count if she's dead? - NOT THE CRICKET
Jar Jar Binks; who the hell is going to think he is anyone's favorite character? - NOT THE CRICKET
WalterWhite JessePinkman - imabonehead
The Dude. - Jenny H. from Android
Me
OK No more external powered USB HD's. They don't last long. Hell I think I've had pet rats live longer.
I like the kits, drives i put in them last long - Mike Nencetti
Yeah, either get an external enclosure that you can put your own drive in, or perhaps a WD Passport drive, no bigger then 500GB (bigger than that and reliability goes downhill). - April Russo
Mike Nencetti
I decided to manually clean up my twitter feed. this may take a while... http://t.co/5fi29w1KLI
I decided to manually clean up my twitter feed. this may take a while... http://t.co/5fi29w1KLI
How do you follow that many people?! - Anika
I have not used twitter in years. I use it to push to FF. but I may start using twitter again. - Mike Nencetti
I think years ago I was added to one of those he follows back lists, i never follow anyone. people followed me. - Mike Nencetti
Mike Nencetti
On a date with Beverly. (at @OnTheBorder Mexican Grill & Cantina) http://4sq.com/1wHxaox
On a date with Beverly. (at @OnTheBorder Mexican Grill & Cantina) http://4sq.com/1wHxaox
Hope it's a good one :) - Eivind from Android
she was able to enjoy her meal. She takes VSL#3 probiotic to help, along with the usual medicines. was a nice date - Mike Nencetti
This pic was taken on the anniversary of my wife's diagnosis of Glioblastoma Multiforme (GBM) grade 4. a year ago she was being prepped for brain surgery. At the time we were not sure if she would last this long. we now have hope. We focus on quality, not quantity. we celebrate the small victories. we persevere. After spending time on a few GBM support groups, I realize how fortunate these past 12 months have been. - Mike Nencetti
The cancer attacked the left frontal lobe, which is personality/communication. There are times she can hear everyone, but then cannot understand me, so I have to repeat things 3 times. Other times she is fine. It's my life now, i am used to it - Mike Nencetti
*hugs* - Anne Bouey
Mike Nencetti
Visiting my lovely wife. (@ Levine Cancer Institute) http://4sq.com/1ou3bhB http://t.co/QuAo47lzqQ
Visiting my lovely wife. (@ Levine Cancer Institute) http://4sq.com/1ou3bhB http://t.co/QuAo47lzqQ
:) - Jenny H. from Android
Thursday and Friday were good days for Beverly, Saturday not so good a start, will see how they day goes. This is her 8th month on Avastin IV chemo. - Mike Nencetti
This is such a lovely picture of you two! I hope the day brightens up for you both. - WoH: Professor MOTHRA
Mike Nencetti
Morning walk with Beverly (@ Clark's Creek Greenway - NE) http://4sq.com/1r8XMhZ http://t.co/GNdFKvp4An
Morning walk with Beverly (@ Clark's Creek Greenway - NE) http://4sq.com/1r8XMhZ http://t.co/GNdFKvp4An
yay advanced tweets is working again - Mike Nencetti
Starmama
I am the only person in the US with my name. My kid's the only one with his. How many people have your name? http://howmanyofme.com/search/
just me - Mike Nencetti
Six of me. - Janet from FFHound!
I am just a number (there's 9289 of me!) - Marina's Godmother :-)
It says 3 but it's probably all me at different addresses. - Rodfather
711 with my first name but 801 with my middle name (which I usually go by). - (Curtis) Alan Jackson
my middle name is vanishingly rare. 3 people in the US have my first and last name. - Big Joe Silence
There are fewer than 1591 people (which is an odd way of putting it) named "Eivind." One or fewer of them share my last name. - Eivind from Android
734 with the same first and last name. There are nearly 1.5 million with my first name and over 150k with my last name. I knew from a very young age that I had a super common name. I was jealous of my sister who had a more unique name. - Jenny H. from Android
3 - Bren from iPhone
OTOH, it's kind of nice because it means people who try to Google my name aren't likely to find me. ;) - Jenny H. from Android
"There are 1 or fewer people in the U.S. named Amit Patel." Um, no. Not even close. - Amit Patel
"There are 2,253 people in the U.S. named Steven Perez." - Steven Perez
Looks like I'm the only john jacob jingleheimer schmidt. - Todd Hoff
28 people have my full married name. it's in the 2 thousands with my maiden name. - Lnorigb
Just me. - Betsy
I'm upset. Famous names for Fuller do not include Bucky. WTF mate, that's like the most famous Fuller. (2093) How they get the number is rough though; they do Percentage of Population with first * Percentage of Population with last = And then convert that percentage back into an integer, so it's probably not that accurate once you factor in cultural naming patterns, e.g. See Amit's comment. - NOT THE CRICKET
About 150. - Joe
Nine and I get email for at least one of them. - Kristin from iPhone
22 of me - MoTO: Team Marina from Android
Just one of me because I'm a goddamned unique snowflake. - Akiva
11 of me... and one of them lives across the damn street. - Jennifer Dittrich
Hmm. Using my legal name (adding the "er" at the end of the first name), the site comes up with 374. Using the name I use most everywhere, "1 or fewer," partly because apparently ***nobody's*** named Walt. I know that the ornithologist in the midwest also uses "Walt" as his first name, so "1 or fewer" is just strange. - Walt Crawford
Mike Nencetti
St Francis De Sales Class of 1976 - http://www.youtube.com/watch...
St Francis De Sales Class of 1976
Play
my 8th grade graduation. I should add a soundtrack - Mike Nencetti
Mike Nencetti
Harmon Field Basketball - Sandra vs Dad - late 1960's - http://www.youtube.com/watch...
Harmon Field Basketball - Sandra vs Dad - late 1960's
Play
at least youtube publishes. This is just a home movie i decided to edit and upload. - Mike Nencetti
Mike Nencetti
Test failed. - Akiva
toast - Big Joe Silence
i forgot how to fix or jump start Advanced tweets. - Mike Nencetti
There's a way to do that? My Advanced Tweets is out too. - Spidra Webster
Mike Nencetti
Yes my wife is driving on the interstate. Quite a milestone for her. She is happy to be behind the wheel again. - Mike Nencetti from iPhone
^ great! - Marie
Mike Nencetti
Thanks jkram. my tweet did not turn out too well, did it. - Mike Nencetti
Mike Nencetti
A 1 minute clip of the Peachoid water tower in Gaffney, SC http://www.youtube.com/watch...
A 1 minute clip of the Peachoid water tower in Gaffney, SC http://www.youtube.com/watch?v=3QntoCJ9dtc&feature=youtu.be
Play
I took this video on a trip to Atlanta on Wednesday. - Mike Nencetti
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