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Mike Nencetti › Comments

Mike Nencetti
Nearing the end, holding her hand. Love my girl.
You're a good man Mike. - Mark H
You two are present in my thoughts today. *hug* - Marie
Loving hugs for you and Beverly. - Anika
We are holding you both. - m9m, Crone of FriendFeed
You are both in my thoughts. - Kristin
Much love to you both. - Corinne L
Mike, you and Beverly are incredible people!! strength and love to both of you ... (((((((Hug)))))) - Sepi ⌘ سپی from iPhone
Holding you and Beverly so tight in my heart today. - vicster: hon. canadian
So much love for you both. <3 - Jennifer Dittrich
Love and peace to you. Endings are hard, but an ending that's as peaceful as possible is a blessing, to my mind. May she slip as easily as my father did. My thoughts are with you both. - ellbeecee
Peace be with you both. *hugs* - Anne Bouey
Wishing you peace, love and light. - Gabrielle from FFHound(roid)!
I've been thinking about you from across the state. - Stephan!e•CogSc!L!brar!an
*many hugs* - bentley
Love and peace to your whole family. You are wonderful, amazing people. - Shannon - GlassMistress
Thank you everyone. we do no know how long, she's refusing food drink and medicine. I think her body has stopped digesting food, etc. so there is no point in feeding her. we have morphine when we need it. Very fortunate she has had no seizures. - Mike Nencetti
Sending lots of love and prayers to both of you. *hugs* - Tamara J. B. from FFHound(roid)!
*Love and peace* - AHnix (Anna Haro)
Sounds peaceful for you both. - Lnorigb from FFHound!
Love and peace to you both. - Mary Carmen from iPhone
(((((((Mike))))))) - Petty LaBelle
Our love to you both, - Pete
Prayers for peace. Love to you both. - Friar Will
Such honor you show all of us. Prayers of comfort for you both. - Janet from FFHound!
Love, peace, and grace for you both. - Greg GuitarBuster
Thank you everyone. we are on day two of no food or water. she is refusing oral medicine. fortunately the hospice is visiting at 8:30. i will not force anything now. we have to leave her this afternoon to meet with the funeral director at 1pm. Fortunately we have an aide who will stay with her.She coughs from the saliva in her mouth. the atrophine does not fully help this. she did get some rest last night. - Mike Nencetti
*hugs* - Anne Bouey
You are both in our thoughts. Wishing you strength and love ((hugs)) - WoH: Professor MOTHRA
Thinking of you both, you're in my prays! *hugs* - Halil
Sending so much love right now. *hugs* - Jenny H. from Android
Much love and peace to all of you, Mike. - LB's never Kippled
Thanks everyone, we are on day 3 of no food and water. Still stable condition. Sleeping most of the day. So it's just sit and wait. I'm good. - Mike Nencetti
*hug* - Kevin Johnson from Android
*hug* - Marie
Peace be with you both. - Irrational Numbers
Peace and love to you both - Victor Ganata
(Mike) - Micah from FFHound(roid)!
we are getting some water in with a dropper. we just have to be careful it does not go into the lungs. - Mike Nencetti
*hugs* Thinking of you and Beverly, Mike. - Stephen Mack
Continuing to pray for you and Beverly. - Jim: with more caffeine!
Oceans of love, to the both of you:* - Monaca di V.le Monza from BuddyFeed
Gentle hugs for Beverly and big hugs for you, Mike. - Anne Bouey
Thinking of you. - Meg VMeg
*Hugs* - Brixie
For those following this thread. it is the start of day 6 without food or water. she has to be kept very still. we stopped daily baths, as it is painful, and the rehydration is prolonging her suffering. we will need to give her morphine before we try to change her. her lungs are clear as of yesterday. We have no means to communicate with her. skin rashes are under control. We lost... more... - Mike Nencetti
Thinking of you Mike and sending hugs. - Galadriel C. from Android
Thank you for the update. Thinking of you both every day. *hugs* - bentley
A big hug, Mike. I pray the Lord have mercy. - Monaca di V.le Monza from BuddyFeed
Oh God. Thank you for update. I wish God has mercy… - Irrational Numbers
My thoughts are with you both. May Beverly be at peace. - J. Marie B
May you both find peace. *hugs* - Anne Bouey
Mike, may she soon be free of this pain and suffering. Holding you in my prayers, still. - Janet
*hug* - Marie
I'm so sorry and I hope the pain is over soon. *hugs* - Stephen Mack from iPhone
I'm so sorry, Mike. Sending prayers of peace and mercy. - Corinne L
Love, peace, and comfort to you all. - joey
Yes we are on day 9 without food or water. The RN said it could be at any time. It has been rough, but the nurse said we have done a good job. We just wait and administer morphine on a schedule. ... and tell her we love her. - Mike Nencetti
You are both in my prayers and thoughts. Wishing you both peace and comfort. *hugs* - Anne Bouey
Wow, Mike. Holding you both in prayer. You're a good man. - LB's never Kippled from Android
You are in my thoughts. I am so sorry - Elena
Love and strength to you both, Mike ((hugs)) - WoH: Professor MOTHRA
She passed peacefully at 8am this morning. I was by her side. uncommunicative, but she did have tears when I told her I loved her and goodbye. - Mike Nencetti
Oh Mike. I am so sorry :'(. My deepest simpathy - Monaca di V.le Monza
((Hugs)) thank you for sharing with us, Mike, and sincere condolences to you and your family. May Beverley rest in peace, - WoH: Professor MOTHRA
Our thoughts are with her, and all who loved her. - Pete
Thank you for sharing mike. Love to you and yours. How terribly sad to lose her and how wonderful to have had her in your life. May peace find you. - Shannon - GlassMistress
Much love to you and your family for sending Beverly home peacefully and lovingly. - Anika
followed silently your posts for months, thank you for sharing with us. my condolences to you and your loved ones ((((((hugs))))))) - ((°}
another silent bystander sending you love and grace and admiration. - Jenica
Hugs Mike, sorry for your loss. I'm sure she knew how much you loved her. - Brixie
I'm glad she's at peace. I'm so sorry for your loss. - LB's never Kippled
I'm very sorry for your loss. Thank you very much for sharing her with us. *hugs* - bentley
My deepest and sincere condolences, Mike. - Eivind from Android
I'm so sorry, Mike. May Beverly rest in peace. May you find comfort and peace, too. *hugs* - Anne Bouey
My condolences, Mike. - MoTO: #TeamMarina
So sorry Mike. Glad you got to be there at the end. *hugs* - Jaclyn aka spamgirl
I'm so sorry, Mike. My deepest condolences. - Jennifer Dittrich
You have my deepest sympathies, Mike. - Bren - pseudo-Buddhist from iPhone
*hugs* I'm sorry, Mike. - John (bird whisperer)
*hugs* sorry for your loss. Thank you for sharing. - Gabrielle from FFHound(roid)!
Thank you for sharing this journey with us. Please know that we are still thinking of you. - m9m, Crone of FriendFeed
I'm so sorry Mike. My thoughts are with you and your family. - Me
So sorry, my condolences, you're in my thoughts and prays. *hugs* - Halil from FFHound(roid)!
Our thoughts are with you. I'm sorry for your loss. - Marie
My condolences, Mike. Peace and comfort to you and your family. - Corinne L
I'm so sorry. I've been thinking about you and your family & will continue to do so. May you all find peace. - Stephan!e•CogSc!L!brar!an
Blessings peace and love to you and your family. - RetiredTeacherD
Wishing Beverly a beautiful and peaceful rest. And wishing you and all who love Beverly peace. My deepest condolences. - vicster: hon. canadian
You and your family are in my thoughts. *hugs* - Kristin
Sending condolences to you and your family Mike. Wishing Beverly peace and good wishes. - Galadriel C. from Android
My thoughts and condolences for you and your family, Mike. Thank you for sharing this part of your life experience. - Micah from FFHound(roid)!
So very sorry for your loss. Many hugs to you and your family. - Elena
I am very sorry for your loss, Mike. - Stephan
May she rest in peace. Love and peace to you and your family. - AHnix (Anna Haro)
Mike Nencetti
Here is a link to my wife Beverly's battle with Glioblastoma Multiforme brain cancer http://www.nencetti.org/2013...
Here is a link to my wife Beverly's battle with Glioblastoma Multiforme brain cancer http://www.nencetti.org/2013/12/04/glioblastoma-multiforme/
Thank you. - bentley
That's quite the battle, Mike. - Stephan from iPhone
Glad that this is helping you, and that you have a record. It's hard to know what to say, Mike, but I think of you and Beverly often, and I wish you all the love and joy you can find together ((hugs)) - WoH: Professor MOTHRA
Aw. Many hugs to you both. - Meg VMeg from Android
My thoughts and prayers continue to be with you all. - Friar Will
Sending you and Beverly lots of prayers and comfort hugs. - Tamara J. B.
Thinking of you and Beverly and praying for comfort and peace for both. *hugs* - Anne Bouey
Reading this made me pause, and offer up a prayer. All the very best to both of you. - Iain Baker
Hugs, lots of hugs also from here - Brixie
Thanks everyone. I had been forgetting to use Twitter, so I thought I would leave the link as my last tweet for a while. Forgot it would filter here. Been busy managing the hotel/ restaurant/ zoo that is our home. Her condition is changing slowly, vitals are good. I'm good. - Mike Nencetti
Still thinking of you both. Hope your weekend is going well ((hugs)) - WoH: Professor MOTHRA
We celebrated thanksgiving today, in case she is unable to later this month. Have a full house of family. We had a successful first week with her bedridden, keeping her clean and comphy. She is not in any pain. She is able to enjoy most food.. my days usually start at 4am .I'm doing good. thanks for checking. - Mike Nencetti
Thanks for sharing Mike Happy Thanksgiving to you and yours. - Steve C Team Marina
sending my prayers your way! - mina_sydney from iPhone
I bet the Thanksgiving was wonderful. - Anika
Early Thanksgiving is a great idea. I'm sure everyone present appreciated it. - Marie
I'm glad you all were able to enjoy Thanksgiving. - vicster: hon. canadian
Zulema ❧ spicy cocoa tart
Ouija Boards Are Even Creepier When You Know How They Work - http://nerdi.st/137nIAq via @NerdistDotCom
Ouija Boards Are Even Creepier When You Know How They Work - http://nerdi.st/137nIAq via @NerdistDotCom
i tried this a few times as a kid - once we used it too long, apparently this is a bad thing to do. it spelled out GO and flew off the table. we stopped using it. - Mike Nencetti
See, I don't find that explanation creepy at all. - John (bird whisperer)
It's creepy because the Ouija accesses a part of your brain you can't talk to. - Zulema ❧ spicy cocoa tart from Android
Doesn't creep me out either, but then I'm a big believer in the power of intuition & the subconscious. - Corinne L
Tried this a few times as a kid, with my older brother. It always spelled out insults, directed at me. I refuse to accept their explanation for it, preferring to believe in one much simpler. - April Russo
Mike Nencetti
We may have reached the point where she stays in bed. The Hospice nurse recommended no more commode. She is experiencing pain. May need to start the morphine drip. Our plan is to keep her here. She still has her smile
What a tough thing. Thinking of you.. - Mary B: #TeamMonique
Sending you both prayers of comfort. - Janet from FFHound!
Sending good thoughts to you both. - Galadriel C.
Keeping you both in my thoughts. - vicster: hon. canadian
Mike, I have been praying for you and your wife and will continue to do so. - Jim: with more caffeine!
Much love, Mike. Praying for y'all. :( - LB's never Kippled
I'm glad you have the hospice to support you all ((hugs)) you are in our thoughts - WoH: Professor MOTHRA
Love and prayers to you both. - Mary Carmen
My thoughts are with you. - Micah from FFHound(roid)!
Strength and peace. - J. Marie B
Thinking of you guys... Praying for peace and comfort for both of you. - Lisa L. Seifert from iPhone
I am so sorry :( - Monaca di V.le Monza from iPhone
Much strength. - Stephan
Be well - WarLord
Wishing you both peace. *hugs* - Anne Bouey
Peace and blessings to both of you. - Corinne L
Thinking of you both. - Me
Lots of prayers and comfort to you both. - Tamara J. B. from FFHound(roid)!
*hugs* - bentley
Thinking of you and Beverly. Peace for both of you. - Greg GuitarBuster
having been through this so recently with my father, my thoughts are very much with you all. - ellbeecee from Android
I'm glad that, despite her pain, she is still smiling. You're both in my thoughts. - Jenny H. from Android
definitely keeping you both in my thoughts - Mr. The Jason Fleming
may you all be peaceful: you, your wife, your family, and the hospice workers. may you all be free of suffering. - Stephan!e•CogSc!L!brar!an
thank you everyone. FF is a special place. y'all rock. - Mike Nencetti
Mike Nencetti
Tonight many siblings visited, (From New York, California and Illinios.) Beverly was well enough to be wheeled into the kitchen, as food was bring prepared. She was only able to stay in the chair around 90 minutes, but what a a great time. The party was relocated to her son's house so she could sleep. Wonderful evening.
Our only issue is I cannot wake her to give her Kepra, her anti seizure pill. out cold. - Mike Nencetti
I'm glad you had a good visit. - LB's never Kippled from Android
That's good to hear, Mike. - Anika
I'm so glad that you and Beverly had a great evening. - vicster: hon. canadian
that's wonderful for all of you. - Stephan!e•CogSc!L!brar!an
Mike Nencetti
My wife can barely speak at all, due to the tumor. (to communicate we ask questions and she nods) I have noticed in the early mornings she says a few words. I made a short video and emailed it to her daughter, saying thank you and love you. only 5 words, but the video made her day.
You are a good guy, Mike. These days are precious and it takes a huge heart to share them. You are amazing. - Shannon - GlassMistress
no matter how bad things are - we try to find some joy in each day, we call them small victories. its going to get tough in the coming weeks. we have all the hospice meds ready to make this as comfortable as possible. thanks shannon. - Mike Nencetti
That's really beautiful, Mike. - Jenny H. from Android
Be well - WarLord
that's a wonderful thing to do -it's something her daughter can hold on to and save. Having just watched my dad in hospice care and my mother caring for him, please remember to take care of yourself too. And yes, the small victories, whatever they are, are so important. - ellbeecee
What a beautiful gift, Mike, both for Beverly that she was able to tell her daughter that she loves her, and for her daughter, who will treasure that. I continue to hold you both close in my thoughts. - vicster: hon. canadian
That's a wondferful thing to have done, Mike. I wish you both many more victories and joys in the coming weeks. - WoH: Professor MOTHRA
Do what you can to take care of yourself. With my mom we would watch videos of family a little bit but lots of distracting videos like Too Cute kittens and dogs. Different situation for you but I hope you keep finding your Too Cute moments together. - Steve C Team Marina
All the best Mike. - Eric - Regulate
Mike Nencetti
contacting hospice creates family drama. Im ok with being the bad guy.
I'll do my best to keep the drama off of Facebook. I just desperately needed a hospice bed. My poor wife is going through hell. She may be put through more hell, I'll just do my best to give her the best care. She deserves it. - Mike Nencetti
She cannot talk, she cannot walk, she cannot dress herself, she cannot tell someone she is in pain. Things will get worse, horrifically worse. My calling hospice was an intervention for her. A cry for mercy. But unfortunately family may step in and - well hopefully the bad guy can get her the care she needs. I do not need to be liked, - Mike Nencetti
What is the opposition to hospice? - Anne Bouey
Do what you need to do. My dad has been at home under hospice care since mid/late August. He's very near the end now, but this was the right thing to do. You know your wife and what she wants. Focus on getting that. - ellbeecee from Android
Chemo is out because she cannot move without crap loads of steroids and and almost choked on her vomit a few days ago, by the time could qualify for a trial she wil most likely be dead. I really have no idea. - Mike Nencetti
I'll just let things play out. My only drama was taking the Drs advice and contacting hospice. But wow, am amazed how that can cause so many attacks on me. I'm ok. I will take the hits for my wife. - Mike Nencetti
Oh, Mike. I really hope that the family comes around and realizes that hospice care is what is best for Beverly. - vicster: hon. canadian
It's her daughter. She will be here soon. - Mike Nencetti
I'm sorry that their way of dealing with their grief is to lash out at you, Mike, and you are a very forgiving guy to take it on the chin like that. You know what is best, and you are doing what you need to do. All strength and love to you both ((hugs)) - WoH: Professor MOTHRA
My hope is that when her daughter arrives, she will be able to meet with hospice and see that they are there to keep her mom comfortable and to support you and all the family (including her). These are always tough decisions, but you know best. I wish you peace, Mike. *hugs* - Anne Bouey
glioblastoma destroys famiies. We are fortunate, most GBM patients have little quality of life. I'll let her daughter do what she wants. I am as worried for her as I am for my wife. Being the step dad, not being likes is part of the job. I do not think there is much she can do.. - Mike Nencetti
Hopefully she does what's best for her mum and not just what's best for her. Quality of life goes up and down the chain and playing the hero (or martyr) isn't always the best option for the person who needs the care. Sending peace and love, my friend. - Johnny
I can't say enough wonderful things about hospice. In my experience, people get upset that hospice gets involved because they're afraid it means their loved one is dying today or tomorrow .. and while that can be the case .. you'll get more benefit from hospice if they get involved before it gets to that point. Hospice offers amazing support and counseling for the entire family and they... more... - Kristin
Thanks everyone. i meet with the social worker, and hospice nurse today. not yet heard about the bed. I'm going into work the rest of the week, to avoid as much drama as possible. i'm being treated like one of the kids, not her husband. i'll try to update this thread soon. i'll get counselling soon. i am sure I will need it. - Mike Nencetti
I often wish Josh's family had been okay with hospice care for my MIL rather than try to nurse her themselves at home. I honestly think it would have been better for everyone. - Melly - #TeamMarina
oh dear, Mike. I'm so sorry. But I am glad you've called hospice. I hope you get counseling and the support you need from your own sources. (I bet hospice can help you!!) - Stephan!e•CogSc!L!brar!an
Being "the bad guy" is often merely surrogate for "doing what no one else has the courage to do, even though they realize it must be done." You are to be commended in the manner you've taken care of your wife, Mike. Not that you need a pat on the back from me (or anyone else). - MoTO: #TeamMarina
Thinking of you, Mike. I hope the family will realize you are trying to do the best thing for Beverly and the rest of you. - LB's never Kippled
Maybe it isn't that they object to hospice care, as much as they object to what it means. And yes, you would naturally be "the bad guy" for making them face the truth and taking away any false hope they have left. But for your wife, it's probably best that she is cared for by people that understand her needs, as you understand them, and not cared for by people trying to cling to their... more... - April Russo
Well said, April. - MoTO: #TeamMarina from Android
Fear does horrid things to people. I hope her daughter understands you are doing this for love of her mother. So very sorry you are dealing with this! - Janet from FFHound!
Love you man I made the call on mom's hospice but I had a supportive family who trusted me and my decisions. I can't imagine going through it up stream. You're doing all you can the best you can and for the right reasons. Take care of yourself please. - Steve C Team Marina
Thanks everyone. Great meeting with the hospice nurse today. Huge help for Beverly. So glad we have this in place. We would soon be in the ER if not. The nurse will return in two days and meet with Beverlys daughter. I'm going to work wed-fri. We still do not have the bed. I believe the drama will be minimal. Beverly will get the care she needs. - Mike Nencetti
Glad it sounds like things are getting resolved. - Anika
I'm so glad that things are settling toward Beverly getting the care she needs and hope that the drama stays at bay. I'm glad you are seeking out care for yourself as well. Care for caregivers is so hugely important. It is exhausting in every way. - vicster: hon. canadian
I'm so glad that the meeting went well and I'm sending good thoughts to you all - Galadriel C. from Android
Drama is done for now. I'm slowly seeing people help.Family becoming family. neighbors volunteering to help. more food than we need. we have a lot of challenges ahead. I think we will be ok. - Mike Nencetti
So good to hear that things are settling down a bit and people are helping out. Don't hesitate to say if there is anything you need, or if you just want a place to vent. ((hugs)) to you both. - WoH: Professor MOTHRA
Mike Nencetti
Update for those who follow us here. We are done with chemo. My wife wanted to try a 5th chemo, but she is unable to handle it. the latest MRI is bad. Family has been visiting this week. They have seen a decline in the 5 day they were here. She probably has 3 months. My focus is on her quality of life. More family will be visiting.
I am actually in a good place, it was tougher when she lost her communication a few months ago. I have shifted into the caregiver mode. - Mike Nencetti
Oh, I'm sorry to hear that Mike. I'm glad that you and Beverly are surrounded by family at this time. - Anika
We have had a good run Anika. Many people with her cancer only last a few months. We have had many good memories in the last 15 months. - Mike Nencetti
Be well - WarLord
*hugs* My thoughts and prayers are with you both. - Anne Bouey
I'm so sorry. Much love to you both. - Jennifer Dittrich from FFHound!
Thinking of you both. - Marina's Godmother :-)
I'm so sorry. I'm hoping for more good months. - Eivind from Android
You're both in my heart. Sending much love your way. *hug* - Jenny H. from Android
Sorry, Mike. - Stephan from iPhone
MIke, I am so very sorry to hear this update. Know you and Beverly are in my prayers. - Janet
Sorry to read this, Mike. You both are in my prayers and thoughts. - Friar Will
I'm sorry, Mike. - bentley
I am so sorry, Mike. - Corinne L
Oh, Mike. So very sorry. - Mary B: #TeamMonique
You and Beverly are in my prayers also Mike. - Eric Logan from FFHound!
Strength and love to you both, and please let us know if there is anything we can do ((hugs)) - WoH: Professor MOTHRA
You have our love and support. - m9m, Crone of FriendFeed
Continuing the prayers, Mike. I'm so sorry. - LB's never Kippled from Android
Peace to you and yours - Steve C Team Marina
Mike, you and Beverly are always close in my thoughts. I am very sorry that she is unable to handle further treatment. Sending love and strength and peace to both of you. - vicster: hon. canadian
(((hugs))) - Marie
I'm sorry, Mike. - Brent Schaus
I'm sorry. - Rodfather from Android
You're in my thoughts. - Kristin
Peace and love to the two of you and all your family and friends. - joey
I am so sorry. - Yolanda
Sending much love xxxx - Melly - #TeamMarina
Praying for both from Rome I am sorry PEACE AND LOVE - NickCodipietro
Mike - I'm so sorry about this but very glad that you and Beverly have had a good 15 months with memories made. Sending good thoughts to you both. - Galadriel C. from Android
I think things have settled down. There should not be a lot of drama. My wife has slept all day. The steroids are not helping give her energy. Hope the bed arrives today. It was exhausting but I got her showered and changed on my own this am. Glad to know I'll have help. Thanks everyone for listening. - Mike Nencetti from iPhone
My thoughts and prayers are with you and Beverly. - Tamara J. B. from FFHound(roid)!
Mike Nencetti
Taking Beverly shopping at Aldi http://t.co/dWYHRBPYlo
Taking Beverly shopping at Aldi http://t.co/dWYHRBPYlo
Oh, you have an Aldi! Jealous! - Marie
Yes, my wife loves to shop here. She has very little energy to walk, but finds enough for Aldi. - Mike Nencetti from iPhone
How are you both doing, Mike? - WoH: Professor MOTHRA
We are well. no falls this week. Family in for the next few days. MRI Wednesday, Chemo Thursday. Tough decision to up steroids. currently a half pill a day. main stress is the fall risk. a bad fall would change everything. - Mike Nencetti
I'm glad things are going well this week. You are both in my thoughts. - WoH: Professor MOTHRA
Mike Nencetti
Blackouts can put a damper on your weekend plans. Fortunately she did not get hurt either time.
Oh, how scary. I hope you aren't too frazzled. - Anika from Android
Is she doing any better today? - Stephen Mack from iPhone
Oh geez. :-( I'm glad she wasn't hurt and hope she is doing better. - vicster: hon. canadian
Today is sleep. She ate well this morning. It's going to be a challenge keeping her safe because she rarely talks. Rarely seeks help. - Mike Nencetti from iPhone
Oh Mike, keeping you and Beverly in my prayers. - Janet
You're in my thoughts, - Marie
just rest in bed today. Very little energy. Her inability to communicate much does complicate helping her get better. Most likely increase her steroids tomorrow. - Mike Nencetti
Mike Nencetti
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
I have a home care person staying with her during the day when I am at work. It's not cheap but it will help us. They start Tuesday. Hope it works out. - Mike Nencetti
<3 - Marie
Mike Nencetti
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Her communication issues are tough. She has difficulty in constructing sentences. She's unable to email, or text, or use written communication. When people email her I have the challenge of replying for her, When people call her I have to explain she wants to talk, but will get stuck. She most likely will need full time care soon. New chemo drug tomorrow. I'm used to this. we are still doing well, I'll use FMLA if it comes to that. I can work some at home, people will be staying with her, we have a great support group with family friends and our church. Glioblastoma multiforme is called the monster. I am on many facebook groups. I see how it can destroy the caregivers. there is no cure because it is not one cancer. well, thats all I have. im doing ok. - Mike Nencetti
Holding her and you in prayer. - Jim: with more caffeine!
{{{Mike and Beverly}}} I'm glad you have a support system. - Anika
Thinking of you both and sending good thoughts. - Galadriel C.
*hugs* for you and Beverly. - vicster: hon. canadian
Thanks everyone. - Mike Nencetti
Sorry, Mike. I can only imagine how difficult this is. - Stephan
((hugs)) thank you for keeping us updated, Mike. Love and all good wishes to you both. - WoH: Professor MOTHRA
Much love to y'all. - LB's never Kippled from Android
I can't imagine how tough this must be, and I applaud and am humbled that you both can find a smile. You are lovely people. - Shannon - GlassMistress
Mike Nencetti
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Her issues are fatigue, balance and communication (aphasia). But she is still her joyful self. - Mike Nencetti
Mike Nencetti
Hello Friendfeed.
I miss conversations. brain cancer unfortunately can make every conversation a struggle. - Mike Nencetti
We miss you, too. Hoping and praying for the best for y'all. - LB's never Kippled from Android
Just to clarify for all - left frontal lobe glioblastoma brain tumors affect personality and communication. If you met my wife you would have a normal conversation. When I talk to her she takes everything I say is an attack. I am on numerous Facebook support groups, our situation is common. She's doing good. she has lost some weight, had some falls. but is still independent. She still drives, she can be on her own. Chemotherapy will not cure her. Immunotherapy is her best hope for long term survival. - Mike Nencetti
You and your wife are always near in my thoughts. - vicster: hon. canadian
Hey Mike. It's good to hear from you. I'm sorry to hear that conversations with Beverly are becoming increasingly difficult. I hope your support groups are helping you cope with the changes. I can't imagine how difficult this must be for you both. *hug* - Jenny H. from Android
Mike Nencetti
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too. http://www.mapmywalk.com/workout...
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too.  http://www.mapmywalk.com/workout/662978751
She walked yesterday too. So to walk both days following a chemo is awesome. Still waiting to see if there are any side effect to her new chemo drug. none yet. - Mike Nencetti
Mike Nencetti
Crescent communities serving at the Charlotte rescue mission @cltrescue http://t.co/xtMbVhztfg
Crescent communities serving at the Charlotte rescue mission @cltrescue http://t.co/xtMbVhztfg
We served lunch to 75 people. - Mike Nencetti from iPhone
Mike Nencetti
Tonight dinner. Trader Joes Poutine. http://t.co/Hmkinaq3Nn
Tonight dinner. Trader Joes Poutine. http://t.co/Hmkinaq3Nn
How is it? I've always eyeballed it every time I'm at TJs. - rönin
I can't speak for Mike, but I thought it was pretty decent (especially for something you could pull out of the freezer.) - Jennifer Dittrich
I liked it. The cheese curds squeaked. I wish there was more gravy. But not bad for a frozen dinner. - Mike Nencetti from iPhone
(Curtis) Alan Jackson
So I'm looking for a couple projectors to be used to display documents in a medium size conference room with full lighting. (It's instructions for constructing a papercraft project, which they'll be working on.) I'm in some deep water with the various options. Anyone have experience with a sub-$500 that will work in a bright room? - cont -
Audio is being handled by a separate system and we'll be using laptops to provide the video. I have zero brand loyalty. :) - (Curtis) Alan Jackson
Oh, and we'll be getting 'inexpensive' screens as well. - (Curtis) Alan Jackson
Will you be projecting from a computer? Any reason not to buy a cheap HDTV & a Chromecast or HDMI cable instead (keeping in mind that the Chromecast will only work if you have standard WiFi available; it won't work if the WiFi requires you to go through a portal)? - COMPLICATED MR. NOODLE
We thought about that option but we'll have people around a large conference table with the display at one end. A projector will let us have a large image without the storage issues of the cheap HDTVs afterward. We'll be sending the video by laptop. - (Curtis) Alan Jackson
cheaper projectors often do not display high res, and you get resized to 1024x768. Lumens (brightness) is great, but it is also nice when the laptop does not resize. We have a small powerful Optima projector but it was around 900$. - Mike Nencetti
In a way, high resolution would work against us. We're displaying documents detailing steps of putting together a project. Big is good in this case. :) - (Curtis) Alan Jackson
Everybody always wants to get the most for the least $. I'm trying to balance quality with cost agains possible future reuse. - (Curtis) Alan Jackson
(Curtis) Alan Jackson
This was going to be a different post. However, between starting it a few minutes ago and now(ish), I have forgotten what it was going to be. I suppose you can all back to whatever you were doing before you started reading this. (Assuming you remember.)
Mike Nencetti
I'm at West Virginia Welcome Center (Falling Waters, WV) http://4sq.com/1mrtO4o
I'm at West Virginia Welcome Center (Falling Waters, WV) http://4sq.com/1mrtO4o
Professor, that's like telling someone in Napa to say hello to someone in San Diego. - NOT THE CRICKET
the road trip was for my wife. so I did not try to stop to see any friendfeed peeps. One of these days i may travel the country and visit ff people. I am getting good at these long road trips. - Mike Nencetti
Mike Nencetti
The Bev and Mike road trip '14 continues. Traffic is ok. (@ Ladysmith Safety Rest Area North) http://4sq.com/1s3ZIoy
The Bev and Mike road trip '14 continues. Traffic is ok. (@ Ladysmith Safety Rest Area North) http://4sq.com/1s3ZIoy
Are you all coming up to Pennsylvania??? - Friar Will
glad you two are away from arthur - chaz2b
We are in New Jersey. Just a day in wyomissing and then back to nc. - Mike Nencetti
Mike Nencetti
Yes I have to occasionally work here. - Mike Nencetti
Mike Nencetti
I decided to put my recent Palmetto Bluff photos into a Flickr photo album https://www.flickr.com/photos...
I decided to put my recent Palmetto Bluff photos into a Flickr photo album https://www.flickr.com/photos/nencetti/sets/72157645410079334/
Yes I have to occasionally work here. - Mike Nencetti
(Curtis) Alan Jackson
After recently hearing about how Twitter is (supposedly) heading towards the digital graveyard, I think I'm actually more interested in it. After all, we've apparently been zombies on Friendfeed for years. I highly doubt Twitter will completely die, regardless of their foot-shooting efforts.
I am almost using twitter. I may wind up using it to get news feeds. - Mike Nencetti
Mike Nencetti
This was my lunch Friday. Shrimp and grits, brussels sprouts and farro. All topped with sriracha. By Beverly. http://t.co/queDiK4bf4
This was my lunch Friday. Shrimp and grits, brussels sprouts and farro. All topped with sriracha. By Beverly. http://t.co/queDiK4bf4
Those shrimp look massive! - Melly - #TeamMarina
Melly, my wife told me she bought Australian shrimp. - Mike Nencetti
Huge and probably deadly poisonous. - Uli
Kevin Fox
"Who is your all-time Favorite movie character?" Why the heck would I choose that as a security question? I have no freaking idea.
Henchman #4 - Micah from FFHound(roid)!
torgo - Mike Nencetti
Hodor - Stephen Mack from iPhone
'You know what ol' Jack Burton always says at a time like this?' 'Who?' 'Jack Burton. ME.' - Akiva
2nd Tall Man - Kevin Fox
The Thing. - Louis Gray
I am with you on the efficacy of this query. I have no clue either. - Janet
Stuntman. - Joe
Foley Artist. We always applaud them at the credits. - m9m, Crone of FriendFeed
Wilhelm, for his scream. - Amit Patel
Assyrian Ambassador. That guy was one hell of an actor. - Steven Perez
Stephen, Hodor isn't a MOVIE character. :P - Ken Gidley from iPhone
Screaming lady - Heather
Random Subway Rat. - April Russo
Z wins, but does it count if she's dead? - NOT THE CRICKET
Jar Jar Binks; who the hell is going to think he is anyone's favorite character? - NOT THE CRICKET
WalterWhite JessePinkman - imabonehead
The Dude. - Jenny H. from Android
Me
OK No more external powered USB HD's. They don't last long. Hell I think I've had pet rats live longer.
I like the kits, drives i put in them last long - Mike Nencetti
Yeah, either get an external enclosure that you can put your own drive in, or perhaps a WD Passport drive, no bigger then 500GB (bigger than that and reliability goes downhill). - April Russo
Mike Nencetti
I decided to manually clean up my twitter feed. this may take a while... http://t.co/5fi29w1KLI
I decided to manually clean up my twitter feed. this may take a while... http://t.co/5fi29w1KLI
How do you follow that many people?! - Anika
I have not used twitter in years. I use it to push to FF. but I may start using twitter again. - Mike Nencetti
I think years ago I was added to one of those he follows back lists, i never follow anyone. people followed me. - Mike Nencetti
Mike Nencetti
On a date with Beverly. (at @OnTheBorder Mexican Grill & Cantina) http://4sq.com/1wHxaox
On a date with Beverly. (at @OnTheBorder Mexican Grill & Cantina) http://4sq.com/1wHxaox
Hope it's a good one :) - Eivind from Android
she was able to enjoy her meal. She takes VSL#3 probiotic to help, along with the usual medicines. was a nice date - Mike Nencetti
This pic was taken on the anniversary of my wife's diagnosis of Glioblastoma Multiforme (GBM) grade 4. a year ago she was being prepped for brain surgery. At the time we were not sure if she would last this long. we now have hope. We focus on quality, not quantity. we celebrate the small victories. we persevere. After spending time on a few GBM support groups, I realize how fortunate these past 12 months have been. - Mike Nencetti
The cancer attacked the left frontal lobe, which is personality/communication. There are times she can hear everyone, but then cannot understand me, so I have to repeat things 3 times. Other times she is fine. It's my life now, i am used to it - Mike Nencetti
*hugs* - Anne Bouey
Mike Nencetti
Visiting my lovely wife. (@ Levine Cancer Institute) http://4sq.com/1ou3bhB http://t.co/QuAo47lzqQ
Visiting my lovely wife. (@ Levine Cancer Institute) http://4sq.com/1ou3bhB http://t.co/QuAo47lzqQ
:) - Jenny H. from Android
Thursday and Friday were good days for Beverly, Saturday not so good a start, will see how they day goes. This is her 8th month on Avastin IV chemo. - Mike Nencetti
This is such a lovely picture of you two! I hope the day brightens up for you both. - WoH: Professor MOTHRA
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