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Mike Nencetti › Comments

Mike Nencetti
Blackouts can put a damper on your weekend plans. Fortunately she did not get hurt either time.
Oh, how scary. I hope you aren't too frazzled. - Anika from Android
Is she doing any better today? - Stephen Mack from iPhone
Oh geez. :-( I'm glad she wasn't hurt and hope she is doing better. - vicster: full-bodied
Today is sleep. She ate well this morning. It's going to be a challenge keeping her safe because she rarely talks. Rarely seeks help. - Mike Nencetti from iPhone
Oh Mike, keeping you and Beverly in my prayers. - Janet
You're in my thoughts, - Marie
just rest in bed today. Very little energy. Her inability to communicate much does complicate helping her get better. Most likely increase her steroids tomorrow. - Mike Nencetti
Mike Nencetti
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
Beverly all bundled up for her infusion of avastin at Levine Cancer Institute. http://t.co/0jHAhrNOLG
I have a home care person staying with her during the day when I am at work. It's not cheap but it will help us. They start Tuesday. Hope it works out. - Mike Nencetti
<3 - Marie
Mike Nencetti
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Beverly takes me to the dr today. http://t.co/yFDVN5VKJx
Her communication issues are tough. She has difficulty in constructing sentences. She's unable to email, or text, or use written communication. When people email her I have the challenge of replying for her, When people call her I have to explain she wants to talk, but will get stuck. She most likely will need full time care soon. New chemo drug tomorrow. I'm used to this. we are still doing well, I'll use FMLA if it comes to that. I can work some at home, people will be staying with her, we have a great support group with family friends and our church. Glioblastoma multiforme is called the monster. I am on many facebook groups. I see how it can destroy the caregivers. there is no cure because it is not one cancer. well, thats all I have. im doing ok. - Mike Nencetti
Holding her and you in prayer. - Jim: with more caffeine!
{{{Mike and Beverly}}} I'm glad you have a support system. - Anika
Thinking of you both and sending good thoughts. - Galadriel C.
*hugs* for you and Beverly. - vicster: full-bodied
Thanks everyone. - Mike Nencetti
Sorry, Mike. I can only imagine how difficult this is. - Stephan #TeamMarina
((hugs)) thank you for keeping us updated, Mike. Love and all good wishes to you both. - WoH: Professor MOTHRA
Much love to y'all. - LB sad. from Android
I can't imagine how tough this must be, and I applaud and am humbled that you both can find a smile. You are lovely people. - Shannon - GlassMistress
Mike Nencetti
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Dinner with my lovely wife at Casa Grande. http://t.co/CEYLsLrfbk
Her issues are fatigue, balance and communication (aphasia). But she is still her joyful self. - Mike Nencetti
LB sad.
"You can ring my beeeeeeeellllllllll..."
How YOU doin'? ;) - Just another Bubba
Hee! - LB sad. from Android
"Ringa Linga Ling" - MoTO: Team Marina from Android
Ring it, ring it, aaaaaaahhhhhh! - Marie
:D - LB sad.
*joins Bee and Marie for karaoke* - LB sad.
it's the bell-ringing Exverminator! :P - imabonehead
Mike Nencetti
Hello Friendfeed.
I miss conversations. brain cancer unfortunately can make every conversation a struggle. - Mike Nencetti
We miss you, too. Hoping and praying for the best for y'all. - LB sad. from Android
Just to clarify for all - left frontal lobe glioblastoma brain tumors affect personality and communication. If you met my wife you would have a normal conversation. When I talk to her she takes everything I say is an attack. I am on numerous Facebook support groups, our situation is common. She's doing good. she has lost some weight, had some falls. but is still independent. She still drives, she can be on her own. Chemotherapy will not cure her. Immunotherapy is her best hope for long term survival. - Mike Nencetti
You and your wife are always near in my thoughts. - vicster: full-bodied
Hey Mike. It's good to hear from you. I'm sorry to hear that conversations with Beverly are becoming increasingly difficult. I hope your support groups are helping you cope with the changes. I can't imagine how difficult this must be for you both. *hug* - Jenny H. from Android
Mike Nencetti
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too. http://www.mapmywalk.com/workout...
Successful walk on the greenway with Beverly, two days after her chemo. She walked yesterday too.  http://www.mapmywalk.com/workout/662978751
She walked yesterday too. So to walk both days following a chemo is awesome. Still waiting to see if there are any side effect to her new chemo drug. none yet. - Mike Nencetti
Mike Nencetti
Crescent communities serving at the Charlotte rescue mission @cltrescue http://t.co/xtMbVhztfg
Crescent communities serving at the Charlotte rescue mission @cltrescue http://t.co/xtMbVhztfg
We served lunch to 75 people. - Mike Nencetti from iPhone
Mike Nencetti
Tonight dinner. Trader Joes Poutine. http://t.co/Hmkinaq3Nn
Tonight dinner. Trader Joes Poutine. http://t.co/Hmkinaq3Nn
How is it? I've always eyeballed it every time I'm at TJs. - rönin
I can't speak for Mike, but I thought it was pretty decent (especially for something you could pull out of the freezer.) - Jennifer Dittrich
I liked it. The cheese curds squeaked. I wish there was more gravy. But not bad for a frozen dinner. - Mike Nencetti from iPhone
Mike Nencetti
I'm at West Virginia Welcome Center (Falling Waters, WV) http://4sq.com/1mrtO4o
I'm at West Virginia Welcome Center (Falling Waters, WV) http://4sq.com/1mrtO4o
Professor, that's like telling someone in Napa to say hello to someone in San Diego. - NOT THE CRICKET
the road trip was for my wife. so I did not try to stop to see any friendfeed peeps. One of these days i may travel the country and visit ff people. I am getting good at these long road trips. - Mike Nencetti
Mike Nencetti
The Bev and Mike road trip '14 continues. Traffic is ok. (@ Ladysmith Safety Rest Area North) http://4sq.com/1s3ZIoy
The Bev and Mike road trip '14 continues. Traffic is ok. (@ Ladysmith Safety Rest Area North) http://4sq.com/1s3ZIoy
Are you all coming up to Pennsylvania??? - Friar Will
glad you two are away from arthur - chaz2b
We are in New Jersey. Just a day in wyomissing and then back to nc. - Mike Nencetti
Mike Nencetti
Yes I have to occasionally work here. - Mike Nencetti
Mike Nencetti
I decided to put my recent Palmetto Bluff photos into a Flickr photo album https://www.flickr.com/photos...
I decided to put my recent Palmetto Bluff photos into a Flickr photo album https://www.flickr.com/photos/nencetti/sets/72157645410079334/
Yes I have to occasionally work here. - Mike Nencetti
Mike Nencetti
This was my lunch Friday. Shrimp and grits, brussels sprouts and farro. All topped with sriracha. By Beverly. http://t.co/queDiK4bf4
This was my lunch Friday. Shrimp and grits, brussels sprouts and farro. All topped with sriracha. By Beverly. http://t.co/queDiK4bf4
Those shrimp look massive! - Melly - #TeamMarina
Melly, my wife told me she bought Australian shrimp. - Mike Nencetti
Huge and probably deadly poisonous. - Uli
Kevin Fox
"Who is your all-time Favorite movie character?" Why the heck would I choose that as a security question? I have no freaking idea.
Henchman #4 - Micah from FFHound(roid)!
torgo - Mike Nencetti
Hodor - Stephen Mack from iPhone
'You know what ol' Jack Burton always says at a time like this?' 'Who?' 'Jack Burton. ME.' - Akiva
2nd Tall Man - Kevin Fox
The Thing. - Louis Gray
I am with you on the efficacy of this query. I have no clue either. - Janet
Stuntman. - Joe
Foley Artist. We always applaud them at the credits. - m9m, Crone of FriendFeed
Wilhelm, for his scream. - Amit Patel
Assyrian Ambassador. That guy was one hell of an actor. - Steven Perez
Stephen, Hodor isn't a MOVIE character. :P - Ken Gidley from iPhone
Screaming lady - Heather
Random Subway Rat. - April Russo
Z wins, but does it count if she's dead? - NOT THE CRICKET
Jar Jar Binks; who the hell is going to think he is anyone's favorite character? - NOT THE CRICKET
WalterWhite JessePinkman - imabonehead
The Dude. - Jenny H. from Android
Me
OK No more external powered USB HD's. They don't last long. Hell I think I've had pet rats live longer.
I like the kits, drives i put in them last long - Mike Nencetti
Yeah, either get an external enclosure that you can put your own drive in, or perhaps a WD Passport drive, no bigger then 500GB (bigger than that and reliability goes downhill). - April Russo
Mike Nencetti
I decided to manually clean up my twitter feed. this may take a while... http://t.co/5fi29w1KLI
I decided to manually clean up my twitter feed. this may take a while... http://t.co/5fi29w1KLI
How do you follow that many people?! - Anika
I have not used twitter in years. I use it to push to FF. but I may start using twitter again. - Mike Nencetti
I think years ago I was added to one of those he follows back lists, i never follow anyone. people followed me. - Mike Nencetti
Mike Nencetti
On a date with Beverly. (at @OnTheBorder Mexican Grill & Cantina) http://4sq.com/1wHxaox
On a date with Beverly. (at @OnTheBorder Mexican Grill & Cantina) http://4sq.com/1wHxaox
Hope it's a good one :) - Eivind from Android
she was able to enjoy her meal. She takes VSL#3 probiotic to help, along with the usual medicines. was a nice date - Mike Nencetti
This pic was taken on the anniversary of my wife's diagnosis of Glioblastoma Multiforme (GBM) grade 4. a year ago she was being prepped for brain surgery. At the time we were not sure if she would last this long. we now have hope. We focus on quality, not quantity. we celebrate the small victories. we persevere. After spending time on a few GBM support groups, I realize how fortunate these past 12 months have been. - Mike Nencetti
The cancer attacked the left frontal lobe, which is personality/communication. There are times she can hear everyone, but then cannot understand me, so I have to repeat things 3 times. Other times she is fine. It's my life now, i am used to it - Mike Nencetti
*hugs* - Anne Bouey
Mike Nencetti
Visiting my lovely wife. (@ Levine Cancer Institute) http://4sq.com/1ou3bhB http://t.co/QuAo47lzqQ
Visiting my lovely wife. (@ Levine Cancer Institute) http://4sq.com/1ou3bhB http://t.co/QuAo47lzqQ
:) - Jenny H. from Android
Thursday and Friday were good days for Beverly, Saturday not so good a start, will see how they day goes. This is her 8th month on Avastin IV chemo. - Mike Nencetti
This is such a lovely picture of you two! I hope the day brightens up for you both. - WoH: Professor MOTHRA
Mike Nencetti
Morning walk with Beverly (@ Clark's Creek Greenway - NE) http://4sq.com/1r8XMhZ http://t.co/GNdFKvp4An
Morning walk with Beverly (@ Clark's Creek Greenway - NE) http://4sq.com/1r8XMhZ http://t.co/GNdFKvp4An
yay advanced tweets is working again - Mike Nencetti
LB sad.
Shopping online for grills makes my head hurt.
Anyone care to recommend a gas grill? - LB sad. from Android
bump. we need one too - Mike Nencetti
Weber seems to be the most popular brand among friends - LoisMarketing
We're looking at a Chargriller 3001 from Lowe's. - LB sad. from Android
Starmama
I am the only person in the US with my name. My kid's the only one with his. How many people have your name? http://howmanyofme.com/search/
just me - Mike Nencetti
Six of me. - Janet from FFHound!
I am just a number (there's 9289 of me!) - Marina's Godmother :-)
It says 3 but it's probably all me at different addresses. - Rodfather
711 with my first name but 801 with my middle name (which I usually go by). - (Curtis) Alan Jackson
my middle name is vanishingly rare. 3 people in the US have my first and last name. - Big Joe Silence
There are fewer than 1591 people (which is an odd way of putting it) named "Eivind." One or fewer of them share my last name. - Eivind from Android
734 with the same first and last name. There are nearly 1.5 million with my first name and over 150k with my last name. I knew from a very young age that I had a super common name. I was jealous of my sister who had a more unique name. - Jenny H. from Android
3 - Bren from iPhone
OTOH, it's kind of nice because it means people who try to Google my name aren't likely to find me. ;) - Jenny H. from Android
"There are 1 or fewer people in the U.S. named Amit Patel." Um, no. Not even close. - Amit Patel
"There are 2,253 people in the U.S. named Steven Perez." - Steven Perez
Looks like I'm the only john jacob jingleheimer schmidt. - Todd Hoff
28 people have my full married name. it's in the 2 thousands with my maiden name. - Lnorigb
Just me. - Betsy
I'm upset. Famous names for Fuller do not include Bucky. WTF mate, that's like the most famous Fuller. (2093) How they get the number is rough though; they do Percentage of Population with first * Percentage of Population with last = And then convert that percentage back into an integer, so it's probably not that accurate once you factor in cultural naming patterns, e.g. See Amit's comment. - NOT THE CRICKET
About 150. - Joe
Nine and I get email for at least one of them. - Kristin from iPhone
22 of me - MoTO: Team Marina from Android
Just one of me because I'm a goddamned unique snowflake. - Akiva
11 of me... and one of them lives across the damn street. - Jennifer Dittrich
Hmm. Using my legal name (adding the "er" at the end of the first name), the site comes up with 374. Using the name I use most everywhere, "1 or fewer," partly because apparently ***nobody's*** named Walt. I know that the ornithologist in the midwest also uses "Walt" as his first name, so "1 or fewer" is just strange. - Walt Crawford
LB sad.
I could drive to MoTO's part of MI in 12 hours. I need to make that happen one of these days.
I'll do shift driving with ya! - Soup in a TARDIS
ROAD TRIP! - LB sad.
*grabs the cooler!* WOOHOO - Soup in a TARDIS
count me in! - t-ra supports #LOLSpidra
*checks for clean towels and status of bail fund* - MoTO: Team Marina
You WILL be passing through PA to pick me up, right? - Janet
Of course! Let's see, that puts us at 20:37 one way... - LB sad.
Too many more people and we'll be forced to rent a party bus, LB. *Forced* I say! - Soup in a TARDIS
I'm small. I can squeeze into the hump seat or the trunk or whatever. - t-ra supports #LOLSpidra
No, no, no. T-ra is just being polite. We totally need a party bus. WITH A JACUZZI. - Soup in a TARDIS
*stocks up on liquor* - MoTO: Team Marina
I can intercept party bus somewhere in Ohio! - Janet from FFHound!
:D - LB sad. from Android
I don't have firm memorial day weekend plans. Just sayin. - t-ra supports #LOLSpidra from Android
If I ever reach the stage of independently wealthy- I will all pay your wages for a one week party bus to B's place event. *ponders numbers for lotto* - Janet
if you drive I77 let me know. still have not met LB... - Mike Nencetti
I figure I've been within an hour of MoTO several times, but always when I'm in the area for other reasons. And any other year, I would've had time this extra long weekend, but plans got changed suddenly last week and I'm only doing an overnight in Michigan. *sigh* Someday. - Betsy
What will Missus Dub say when the party bus of white wimmenz pulls up? - LB sad. from Android
Apparently all pole dancing. Seriously, nearly every party bus pic I can find has a pole dancing feature. Why? Whhhhhy? - Soup in a TARDIS
Oh, my. - LB sad. from Android
I'm now imagining the soundtrack for your party bus. - Katy S
I better not pick the music. If I do it will be nonstop country, folk, and motown. - Soup in a TARDIS
All perfect for pole dancing! - Katy S
I'm trying to imagine the pole dance act that would go with Bogle's "He's Nobodys Moggy Now" (https://www.youtube.com/watch...). It's alarming. ETA: That was my favorite folk song as a kid. I just sang it over and over and over. - Soup in a TARDIS
*limbers up* - LB sad. from Android
Mike Nencetti
St Francis De Sales Class of 1976 - http://www.youtube.com/watch...
St Francis De Sales Class of 1976
Play
my 8th grade graduation. I should add a soundtrack - Mike Nencetti
Mike Nencetti
Harmon Field Basketball - Sandra vs Dad - late 1960's - http://www.youtube.com/watch...
Harmon Field Basketball - Sandra vs Dad - late 1960's
Play
at least youtube publishes. This is just a home movie i decided to edit and upload. - Mike Nencetti
Mike Nencetti
Test failed. - Akiva
toast - Big Joe Silence
i forgot how to fix or jump start Advanced tweets. - Mike Nencetti
There's a way to do that? My Advanced Tweets is out too. - Spidra Webster
Mike Nencetti
Yes my wife is driving on the interstate. Quite a milestone for her. She is happy to be behind the wheel again. - Mike Nencetti from iPhone
^ great! - Marie
Mike Nencetti
Thanks jkram. my tweet did not turn out too well, did it. - Mike Nencetti
LB sad.
What's for supper, FFeeps?
Pasta! - Soup in a TARDIS
a bag of airline peanuts - Kevin Johnson
Breakfast bowl. Hashbrowns and sausage topped with a fried egg. (Yeah, we will be needing a cardiologist ) - Shannon - GlassMistress
salad! butter lettuce, smoked turkey, cheddar, probably some pecans thrown on, maybe some barley? - holly #ravingfangirl
Shredded beef tacos, if everything works out: http://www.cooksillustrated.com/recipes... - Meg VMeg
fresh salad from yesterday's market, and bread, and asparagus, also from market. - Stephan!e•CogSc!L!brar!an
Brisket, potato chips, pickles, avocado, red bell pepper, root beer, and some gelato for dessert. - Kristin from iPhone
Roasted broccoli, cauliflower, bella mushrooms, and garlic. Yum - Janet
I made a big beef stew. It was a huge hit and there are tons of leftovers. - John Dupuis from iPhone
Pan fried venison cutlets and twice baked potatoes with broccoli and bacon. - Jenica from iPhone
spagubbie - MoTO: Team Marina
A pastel with sriracha and a stuffed pepper. - Mike Nencetti from iPhone
Chicken and pasta salads on greens. Pretty tasty :) - LoisMarketing from Android
CostCo pizza - Big Joe Silence
Sounds good, everyone! - LB sad. from Android
Beer can chicken mashed potatoes green beans salad strawberries - Christina Pikas from iPhone
Mike Nencetti
A 1 minute clip of the Peachoid water tower in Gaffney, SC http://www.youtube.com/watch...
A 1 minute clip of the Peachoid water tower in Gaffney, SC http://www.youtube.com/watch?v=3QntoCJ9dtc&feature=youtu.be
Play
I took this video on a trip to Atlanta on Wednesday. - Mike Nencetti
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